Why Wandering Is a Serious Risk for Kids With Autism, Especially in Summer 

 For many families raising a child with autism, one of the biggest fears is a child slipping away. That might mean walking out the front door, leaving the playground or disappearing into a crowd. This behavior, often called “wandering” or “elopement,” can happen in a matter of seconds. It’s more than stressful. In some cases, it can be life-threatening. 

Summer brings even more opportunities for this to happen. Routines shift, outings increase, and kids are often near water, one of the biggest safety hazards for children with autism. Understanding why wandering happens and how to prevent it can help families stay prepared and safe. 

What Is Wandering? 

Wandering happens when a child leaves a safe place without permission or supervision. This can include leaving home, school, a playground, or a caregiver in public. 

In children with autism spectrum disorder (ASD), it’s especially common. A 2012 study in Pediatrics found that nearly half of children with autism had tried to wander or run away at least once after age 4. Of those, 26% were missing long enough to cause concern. 

The reasons vary. Some children may seek out a place they enjoy, such as water. Others may run to escape overwhelming sounds, sights, or situations. But no matter the cause, the risk is high. 

Why Summer Brings Added Risk 

Wandering can happen any time of year, but summer adds new layers of risk. Families are more likely to be out of their routines, exploring new places, or visiting pools, lakes, and beaches. New environments can be exciting, disorienting, or overstimulating for kids with autism. 

Water presents the greatest danger. According to the National Autism Association, accidental drowning accounted for 71% of all deaths resulting from wandering in children with autism under age 15. 

And it can happen fast. The Centers for Disease Control and Prevention (CDC) reports that it takes as little as 20 seconds for a child to drown. 

Safety Strategies That Can Help 

Many families aren’t told about wandering risks when their child is first diagnosed. But there are proactive steps that can help reduce danger. 

Swim lessons are one of the most effective strategies. Some insurance plans may cover swim lessons for children with autism as part of behavioral treatment. Read more in Why Swimming and Water Play Benefit Kids with ASD

Families can also partner with a board certified behavior analyst (BCBA) to teach safety skills. BCBAs can support children in tolerating wearable tracking devices, reducing bolting behaviors, and recognizing safe adults or “community helpers.” 

Other tools include: 

  • Personal ID wristbands or GPS trackers 
  • Secure fencing or home alarms 
  • Creating emergency plans with neighbors 
  • Registering with local police or Smart911.com, which lets families share medical or behavioral information that pops up for 911 dispatchers 

Planning Ahead Brings Peace of Mind 

Not every child with autism wanders. But for those who do, preparation can save lives. 

Summer outings should be fun, not stressful. These 4 Steps to Swim Safety for Your Child with Autism offer practical tips families can use right away. 

For more information on wandering and autism safety planning, visit the National Autism Association’s Big Red Safety Toolkit. 

A Guide to 5 of Milwaukee’s Sensory-Friendly Venues for Families 

Planning everyday outings is something many families do without a second thought. 

However, for families with children on the autism spectrum or with sensory challenges, outings can sometimes feel overwhelming. Simple trips to the store, playground, or events can be especially tough for kids who see the world differently. 

Some kids on the autism spectrum may experience the world more intensely. For them, bright lights can feel harsh, loud sounds overwhelming, and busy places stressful.  

That’s why some families seek out sensory-friendly activities. 

Sensory-friendly spaces are areas designed to reduce overwhelming sights, sounds, and other sensory inputs. They often have softer lighting, quieter environments, and calming features to help kids who experience sensory challenges feel more at ease. These spaces are important because they give families a place where their children can feel safe and comfortable, allowing them to enjoy activities without sensory overload. 

Here are five places in Milwaukee designed with this in mind. 

1. Betty Brinn Children’s Museum 

The Betty Brinn Children’s Museum offers sensory-friendly sessions on the second and fourth Sundays of each month. During these sessions, the museum provides a calmer environment with adjusted lighting and sound, allowing children to explore exhibits comfortably. A quiet room is also available, equipped with adjustable lighting, comfortable seating, and sensory toys for those needing a break.  

Tip for Families: Reservations are recommended. 

2. Marcus Theatres’ Reel Movies for Real Needs 

Marcus Theatres hosts the “Reel Movies for Real Needs” program, offering sensory-friendly screenings of current films. These shows feature lower sound levels and brighter lighting to create a comfortable viewing experience. Participating locations in the Milwaukee area include Ridge Cinema in New Berlin and South Shore Cinema in Oak Creek.  

Tip for Families: Screenings are typically held on Saturday mornings. 

3. Urban Air Adventure Park 

Urban Air Adventure Park in Milwaukee West offers Sensory-Friendly Play sessions designed for children with autism and special needs. During these events, the park reduces noise levels and eliminates flashing lights, providing a comfortable environment for children to enjoy various attractions.  

Tip for Families: Check the park’s calendar for specific dates and times. 

4. First Stage Sensory-Friendly Performances 

First Stage offers sensory-friendly theater performances tailored for children who benefit from adjusted sound and lighting. These performances also provide quiet areas staffed by educators experienced with developmental differences.  

Tip for Families: The upcoming sensory-friendly performance schedule is available on their website. 

5. Milwaukee Symphony Orchestra Sensory-Friendly Concerts 

The Milwaukee Symphony Orchestra hosts sensory-friendly concerts designed for individuals with autism or sensory sensitivities. These performances include modifications such as dimmed house lights remaining on, flexible seating, and relaxed house rules for an inclusive experience.  

Tip for Families: Visit the Milwaukee Symphony’s KultureCity Venue page here for more about their inclusivity program and to download their app. 

Check out our LEARN Behavioral blog on 5 simple play ideas for more sensory-friendly ideas. 

Looking for additional support for your child in Milwaukee, Wisconsin? At Wisconsin Early Autism Project (WEAP), part of LEARN Behavioral, we use science and data to deliver contemporary applied behavior analysis (ABA) therapy, tailored exclusively to your child’s unique needs, behavior, and personality. Learn more about our services in Milwaukee and contact us today! 

5 Tips for Navigating Autism Treatment for Your Multilingual Child

Language development is a critical component of the day-to-day lives of young children. It is used within a variety of contexts, including playing with peers, building relationships, functionally communicating needs, etc. As such, there is a heavy emphasis on language and communication built into most applied behavior analysis (ABA) programs. Because such a heavy emphasis is placed on language, it is important that practitioners are mindful of the specific language or languages that are incorporated in the therapeutic setting. The Association for Science in Autism Treatment recommends supporting  bilingualism for children with autism by encouraging family-centered, culturally sensitive language choices.

By promoting the use of the family’s native language, children have an increased likelihood of communication opportunities with their immediate and extended families, friends, and community. In addition to having more opportunities to communicate, the quality of the interactions will be more meaningful as caregivers are more likely to effectively express their own emotions, hold their child’s attention, and more thoroughly discuss topics of interest when using their native language (Zhou, et al., 2019). There are also benefits to multilingualism outside of the familial unit. Research has shown that children who are raised in multilingual homes tend to demonstrate higher perspective talking skills than children who do not (Zhou, et al., 2019). Despite all of the benefi ts to speaking one’s native language, families often face a number of barriers, especially when seeking out autism-related services.

While we live in a culturally diverse country, English remains the dominant language in most regions of the U.S. When children turn on the TV, chances are the shows they watch are in English. When they go to school, they will receive a primarily English education and their peers will speak primarily English. Autistic individuals who receive behavior analytic treatment in the U.S. are likely receiving those services in English. Despite all of these barriers, there are ways for parents and caregivers to advocate for their bilingual children and family.

1. Look for providers who speak your native language

One of the first measures to take when selecting a service provider is to request clinicians who speak your native language. Bilingual service providers can be hard to find and it may take time, but let your provider know your preference so they can attempt to hire and/or pair you with appropriate staff members.

2. Request translation services.

In cases where there are no staff members available to provide services in your native language, consider asking for translation services. Even if you are proficient in English, it may be easier or feel more comfortable for you to communicate in your native language. Per the Behavior Analyst Certification Board’s (BACB) Ethics Code for Behavior Analysts, the clinician you are working with should make every effort to effectively communicate with you and provide you with the opportunity to ask questions and participate in the development and implementation of your child’s program.

3. Consider the assessment language.

If your child speaks a language other than English, it is important to discuss the benefits of your child being assessed in that language. Providers use assessment results as a tool to guide the clinical program and decision making. Having the results of the assessment in your child’s primary or dominant languages will give a more accurate picture of your child’s strengths and areas of need. The starting point of the program will be more representative of your child’s language abilities.


4. Ensure the program is visually representative of your child and your family.

Visual tools and stimuli are often used as prompts, supports, and/or reinforcement systems within many ABA programs. These visual supports may serve to outline a schedule for the day, visuals might accompany a short narrative or story describing a social scenario your child might encounter, or you might see visual images used as reminders or prompts of what steps come next in routine with multiple steps, such as hand washing.  These visual items should be representative of your child and your family. Discuss incorporating your native language and culture into these items in order to promote their use and acceptance by your child. If your child accepts the stimuli and is motivated to use them, effectiveness of their intended purpose will likely increase. 

5. Discuss your language and other cultural values with your team.

Per the Ethical Code for Behavior Analysts, your cultural norms, traditions, and expectations should be extended through all aspects of the ABA program. Social interactions, communication, play activities, and activities of daily living are areas that are addressed in many ABA programs and are going to be affected by language, culture, and traditions. Discussing the ways your language and culture impact your day-to-day routines and expectations will help the clinical team develop and implement a program that is best suited to your child and your family.  

Serving as the navigator and advocator of your child’s services is a huge role. Advocating for language will often be just as important as advocating for hours, goals, or other supports.  Use your team to provide support and to feel empowered to be the advocate your child and your family need.

What is Contemporary ABA?

People often say that history is written by the victors. When the colonists won the American Revolution, they described the war as a noble struggle to escape tyranny. Had the British won, history books might have called it a heroic effort to save the empire from ungrateful rebels. 

In the same way, most people in America are able-bodied, so they decide what is “normal.” For example, we might see an autistic brain or someone with poor eyesight (but stronger other senses) as less valuable. But really, these are just different ways of thinking and living. 

For more than 60 million Americans with disabilities, this can be a challenge. They have to fit their lives into a world designed for able-bodied people, even though it would be easy to make the world work for everyone.  

Ableism and Ableist Misconceptions

Contemporary treatments include the individual in planning when possible. Contemporary practices change in response to the voices of those who have received therapy in the past. 

Ableism is when able-bodied people assume everyone is like them and fail to see the challenges people with disabilities face.  

Ableism includes unfair ideas, such as thinking people with disabilities always need help, even if they don’t ask for it. Not all disabilities are visible, which can lead to wrong assumptions about mental illnesses being different from physical ones. These false beliefs make it harder for people with disabilities to be treated equally and included in society.  

ABA Intervention

Applied behavior analysis (ABA) is widely regarded as the most effective treatment for autism, supported by decades of research. It isn’t a single therapy method. Instead, it’s a flexible approach that uses different techniques to help children build the skills they need to thrive at school and in daily life. 

Recently, ABA has increasingly become the target of much controversy as self-advocates are speaking up about their experiences. They reject the idea that teaching people with autism the skills deemed necessary without their input or choice. Some advocates say independence is meaningless without happiness and that people with autism should choose their own goals, which might not include fitting in with others.  

ABA, which is essentially the science of good teaching, has a long history and was originally developed in the 1960s by a group of researchers at the University of Washington. ABA was used to treat individuals with developmental disabilities and initially was a rigid, highly structured and teacher-directed program, which led to some of the negative experiences and associations with ABA. Historically, for example, ABA was used to reduce or eliminate “stimming” – repetitive physical movements and sounds that may soothe and reduce anxiety. We now better understand that stimming helps people with autism manage their sensory processing and their environments. 

Just like in other areas of medicine and science, the field of ABA has advanced in a significant and meaningful way to become a play-based, naturalistic, family-focused and individualized, contemporary treatment that is tailored to the unique needs and goals of everyone. A good ABA program collects and reports data to show effectiveness. Providers must demonstrate success, validated by parents, through goals set with the family. If your provider doesn’t follow this approach, they may not be using best practices.  

ABA now adapts to individual needs by learning from adults. While negative experiences must be addressed, dismissing ABA entirely overlooks its success for many. Good programs focus on the client, seek consent, and value input. Research and ask key questions when choosing a provider.  

What to Look for in an ABA Program 

  • Will I participate in determining the goals of treatment for myself/my child? 
  • How are your staff trained? 
  • How is my child’s program developed? Do all clients receive the same program or are they individualized? 
  • Will there be parent goals as part of my child’s program? 
  • How often is my child’s program modified or revised? 
  • How is data collected and reported? 
  • How often will I see data on my child’s progress? 

Your child’s program should be client-centered and future looking, which means that your family and relevant caregivers are providing input into your child’s strengths and challenges, and that you and your child are helping to guide the goals of his/her program based on your preferences and needs. 

The science of ABA has a long history with decades of research to support its development and evolution. While ABA is most widely known in its application to autism, ABA was developed, and has been applied, to address many circumstances regarding behavior that matter to society. ABA is applied in many different areas, including mental health, animal training, organizational behavior management, marketing, forensics, sports, and physical health, to name a few. Just as other areas of science and medicine advance and application of treatments change, so has the field of ABA. Many lives have been impacted by ABA for the better. It is incumbent upon the professional community to listen, learn, and evolve its practice so that their services are as relevant and effective as possible. After all, the purpose of ABA is to help children with autism achieve the goals that matter most to them and their families — goals that foster growth, independence, and joy in their everyday lives.  

Q&A About ABA Therapy for Children with Autism: FAQ for Caregivers

Was your child recently diagnosed with autism? Are you beginning to navigate treatment for your child? Before you get started, check out these seven FAQs about ABA therapy.

What is the goal of ABA therapy?

ABA therapy is designed to support autistic individuals and their families, achieve their identified goals, and improve their quality of life. ABA-based interventions are supported by decades of research and enhance social, communication, play, and adaptive skills. Services incorporate the needs and interests of the autistic individual and their caregiver(s). A behavior analyst delivers the ABA services with the help of behavior technicians, who often provide direct care to the autistic individual. Services are tailored to the individual’s unique needs, with their feedback, and evolve over time. Services for children may look quite different than services for adults, given the individuals’ needs differ over time.

What is “contemporary ABA therapy”?

At LEARN, we refer to our approach as “contemporary ABA.” It is an evolved approach to ABA therapy that promotes individualized treatment, naturalistic and play-based teaching, and is person-centered. LEARN provides a contemporary approach that acknowledges the evolution of ABA, values the individual and their family, and creates space for individuality. Practicing contemporary ABA means that our behavior analysts deeply understand their responsibility to positively and meaningfully impact the lives of the individuals served.

How many hours of ABA therapy will my child receive?

Your child’s hours will be determined between you and your behavior analyst. Your behavior analyst recommends hours based on assessing your child’s needs, other therapies received, and your feedback as the parent/caregiver. Focused programs range from 10-25 hours per week, and comprehensive programs range from 30-40 hours weekly. At LEARN, we provide home-based, center-based, and community-based services, and you can reach out to your local clinical director to find out which services are available in your area.

Are your ABA therapy services individualized?

Absolutely! Each autistic person we serve is unique, and we believe that should be celebrated. Our goal is to promote individual interests and incorporate those into ABA therapy. Behavior analysts make individualized recommendations for services, including hours based on the child and customized goals that fit their needs. Behavior therapists receive training on how to understand the preferences of their clients and include those in sessions to make them fun, rewarding, and engaging.

How is neurodiversity integrated into your approach to ABA therapy?

Listening to the perspective of autistic folks has informed our approach to ABA therapy and led us to incorporate neurodiversity into our practice. Our goal is to elevate the autistic voices in our community, including the individuals we serve, our neurodivergent employees, and the greater neurodivergent community. We’re deeply committed to person-centered ABA therapy practices and promote assent-based care, meaning we validate the identities and experiences of neurodivergent folks and create space for autistic voices to be heard and upheld.

Will my child be required to do discrete trials and sit at a table?

Not all autistic folks benefi t from discrete trials or tabletop work. For example, a two-year-old child with lots of energy may benefit more from a play-based approach with the therapist sitting on the floor and embedding learning opportunities in play with their favorite toy. Behavior analysts overseeing the treatment plan take time to assess the individual’s needs and work collaboratively with the family to identify an approach to treatment that will work best for the child.

What if someone doesn’t want ABA therapy?

We understand that not everyone seeks ABA therapy, feels it’s the best fit, or perhaps, thinks it’s the right time to try. As with other medical services, the patient (along with their caregiver, if a child) has the right to decide when, if, and what treatment is right for them. Not all ABA therapy providers have the same approach, either, and LEARN supports a family’s right to choose a provider that meets their needs and is a good match for their treatment goals. We want families and our clients to be excited about services and encourage collaboration on our journey together.

How to Help Your Child Through a Meltdown

There is no “one-plan-fits-all” approach for handling meltdowns. When children with autism hit sensory overload, their reactions can be intense, and knowing how to respond thoughtfully in the heat of the moment can be challenging.

Unfortunately, there is no magic wand to make meltdowns go away. But there are tactics and strategies to help tame a meltdown when your child feels overwhelmed. The key is to stay calm and work your way through it.

Assessing the Situation, Identifying the Triggers 

One thing that can help is to understand the reason for the meltdown, while recognizing that reasons can vary greatly from child to child. For instance, your child may not want to do certain tasks. They may be nervous about school. They may get embarrassed about underperforming, when compared to peers. Or they may struggle with separation from mom or dad.

Some kids have meltdowns because of environmental factors like room temperature, new students, or how the desks are set up in the classroom. Even small changes in the environment can lead to lead to intense feelings— rearranging furniture, for instance. Take note of the time and place of the meltdown and factors that might be overwhelming. Once you identify the trigger, you can see if there is a way to avoid it.

If your child can have conversations, try to discuss and get to the root of the problem. This can also help you identify patterns of behaviors to address. If your child is unable to have a conversation or communicate verbally, pay attention to other communication cues to try to better understand the problem.

Knowing the cause of the behavior isn’t mandatory, but it is helpful in knowing how to address it. In some cases, you can eliminate the trigger. Other times, you just have to wait it out and give your child space to rest and recover.

 

Home-Based Strategies

One way to make your expectations clear is to create a token/reward system at home. For example, you can create a chart on which you and your child come up with and list desired behaviors. Use pictures instead of words if it helps your child understand your expectations. Talk out loud about your goals and the rewards your child can expect for meeting those goals. Remember: the rewards don’t always have to be tangible items like a pack of gummies or a cup of hot chocolate. Rewards can also be experiential, such as playing a special game before bed, reading a favorite book, or baking a tasty treat together.

As you work with your child to create your list or chart of behavior goals, consider these possibilities:

  • Turn-taking: Here, you can explain that you and your child are going to sit down and play with toys. After a minute, ask your child for a turn with their toy. If your child gives you a turn, they can earn a token/reward.
  • Sportsmanship: Play a game with your child. Ask them if they want you to let them win the first game. During the second game, let them know you’re going to try to win. Tell them that if you win, and they tell you “good game,” while keeping a happy face, they will earn a token/reward.
  • Doing work: Let your child know that in two minutes, you’re going to ask them to pick up their crayons. If they pick them up quickly, they can earn a token/reward. Start with easy goals. Over time, you can provide less warning and make these more natural, everyday interactions.

Understanding What Happens at School

Targeting meltdowns at school can be more difficult since you aren’t there. If your school has a reporting system to give you a sense of your child’s behavior each day, that can help you measure progress.

For example, some schools use a color scale: green equals good behavior; yellow is slightly disruptive; and red is a meltdown. If your school does not have a behavior reporting system and you think your child could use one, talk to your child’s teacher.

You could include behavior reports from the school in your token/reward system at home—or even set up a separate system based on these reports. For example, a green mark at school could equal an hour of TV time or three tokens, while a yellow mark could equal 30 minutes of TV or two tokens, and a red mark could equal 15 minutes of TV or one token.

You’re probably wondering, “Why reward a red score?” The reason is to reward your child for the positive behavior—bringing home the report—and to avoid taking away everything. For instance, if they think they will lose every privilege, this can increase the chance of a meltdown at school. Remember that you’re creating a reward system, not a punishment system. Focus on reinforcing positive behaviors, without being too harsh when there is a meltdown.

Also realize that reports you receive from school —or from your child or from your own observations, for that matter—are not a complete representation of the situation. Typically, a number of factors contribute to the situation, and behaviors that happen at school (or anywhere else, such as at the doctor or on the playground) can change according to the environment. Be careful not to make assumptions about solutions that may not work in every environment.

Stick to Your Rules, Celebrate Small Victories

Once you set the rules, stick to them. Avoid bartering. This system holds your child accountable and can begin with goals that are easy to reach. Accept that kids will make mistakes and that all kids engage in meltdowns from time to time. Remember to stay calm and keep your cool—these are key to addressing your child’s behavior successfully.

Start with small goals and set realistic expectations —the first one being: your child’s meltdowns will not stop at once. This is a process that will happen slowly over time. Track your progress, and celebrate the little victories when your child reaches behavior goals.

Autism and Picky Eating: Help Your Child Build Healthy Eating Habits

Does your child only eat one brand of chicken nuggets or refuse anything other than a single fl avor of yogurt? Do you pack the same lunch for your child, day after day after oh-so-tiring and monotonous day?

Whether your child attends school or daycare or stays home during the day, it’s important to keep tabs on their eating habits to see what you can do to make mealtime a success. While picky eating is a common problem among all kids, the issue can especially challenge children on the autism spectrum. Here, I share a few strategies that can help. Keep in mind, though, that if your child’s picking eating interferes with their ability to take in enough calories or nutrients, you should reach out to your pediatrician right away.

Set a Goal

As a family, pinpoint what your goal is when addressing picky eating. What’s something specific you want to address?

Do you want your child to waste less? Do you want them to try new foods? Do you want to try more meals and recipes that all family members can enjoy together? Identify and set a specific goal. That way, you can figure out what strategies and steps you need to take to achieve it.

Think About Solutions

Take time to plan and think critically about the goal. For example, if you want to cut down on your child’s snacking, take a step back to consider what it is about snacking that concerns you. Is it that they won’t eat dinner? Or they fill up on foods that lack nutrition? In either case, consider what’s available as a snack. Is there a food you typically offer at dinner that you could offer as a snack? That way, if your child does “fill up” on the snack, that’s OK.

When evaluating your concerns regarding the behavior, be sure to look at a span of time, instead of just one meal or even one day. Give yourself enough time to establish a broader sense of their caloric intake and nutritional needs.

Consider Your Environment

When we think of picky eating, we often focus on the moments in which food is in front of the child. But many factors that influence behavior actually start before this.

Preparation and activity before a meal have a huge impact on the likelihood of eating, including the quantity and variety of food your child eats. Think carefully about the environment you’ve set up for meals and snacks at home. Variables include where your child sits, how you present the food, how much food you present, and more.

Limit Distractions

Regarding the physical setup, have your child sit at a table where they can focus on eating as the primary activity. Are there distractions?

While allowing screen time during snacks and meals may help your child stay seated, screen time can also detract from their attention to eating and to their own internal cues. These cues are important for your child to notice as they explore new foods and how much food to eat.

Aim to minimize distractions. Doing so will help you notice what scenarios lead to more success at mealtime.

Give Your Child Choices

Are you planning to have your child participate in preparing the food or choosing an aspect of the meal? Allowing your child to participate in the preparation and decision-making that go into the snack or meal can help increase motivation to eat the meal.

Perhaps your child can get out ingredients for the meal or hold the bowl while you stir. Allow your child to make small decisions along the way that build buy-in, without compromising the boundaries that you’ve identified for the meal.

For example, you may have decided that the meal will include some fruit at dinner (a food type that is often involved in picky eating). Allow your child some choice in getting to this outcome by letting them know, “We’re going to have chicken drumsticks with a small bit of fruit. Do you want blueberries or watermelon as the fruit?”

This provides boundaries, while still giving your child an opportunity to choose. It’s likely that having chosen blueberries, for example, will lead to a greater likelihood of eating them.

Let Them Serve Themselves

Another way of promoting choice and control is by allowing your child to serve themselves. Your child may not be ready to prepare the meal from start to finish, but they may be able to sprinkle toppings or help squirt dipping sauce on to their plate.

By allowing your child to make small choices throughout the preparation of the meal, you’re deciding what is served (such as tacos), with room for your child’s opinion and preferences to be considered.

Identify Sensory Issues

Some aspects of preparing and presenting food can tell us more about food selectivity and picky eating, and can provide us with more information for the future. In fact, you may discover that your child outright refuses certain foods or entire food categories.

Take a closer look at which foods are left on the plate or pushed away. Try to identify certain sensory and texture properties of foods that are often refused, such as squishy or tough foods.

As adults, we often forget that certain foods, particularly produce, don’t actually taste the same each time we eat them. A tomato purchased at peak ripeness in-season may taste very different from a similar-looking tomato past its prime off-season. For children, this may lead to refusal, often without a corresponding explanation as to why the food was refused. In the future, this could lead to even more refusal.

Of course, there’s not much we can do to minimize variability in produce, but this knowledge can help us understand some of the shifts in preference. And, just as our own food preferences change over time, so do our children’s. We may never know why hot dogs moved from the favorite list to the repulsive list. But a strategic approach to food goals that involves stopping and observing over a period of time, while limiting distractions and making choice part of your child’s eating routine, can make a real difference—and over time, help make family meals more enjoyable for everyone.

Looking for more tips on raising kids with autism? Dr. Temple Grandin shares some of what worked for her as a child in her latest conversation with us on All Autism Talk. Listen to the podcast.

5 Tips for Planning a Successful Vacation for Your Child with Autism

Embarking on a family vacation is a time for creating cherished memories and bonding with your loved ones. For families with a child with autism, finding the perfect destination that caters to everyone’s needs might seem like a daunting task. These resources can
make planning easier.

More vacation destinations than ever are prioritizing inclusivity and accessibility. From autism-friendly theme parks to sensory support on cruises, there are countless options for creating an unforgettable experience.

Here, we break it down and look at five vacation options that celebrate your child’s individuality while providing fun and relaxation for the whole family.

1. Autism-Friendly Travel by Plane

Wings for Autism is a program that helps families with children on the autism spectrum become more familiar with air travel. They offer airport “dress rehearsals” so children can experience the entire process, from checking in to boarding the plane, without actually taking off. This helps them become more comfortable with the idea of flying.

The program started in Massachusetts and has been adopted by more than 70 airports nationwide. JetBlue, Delta, American, and United are among the airlines that routinely participate in programs that support passengers with autism. Some airlines, like Delta, even have multi-sensory rooms in some airports – rooms with calming colors, sounds, and a small aircraft mock-up to let passengers get familiar with air travel.

2. Autism-Friendly Travel by Car

The car brand Chrysler recently partnered with the Autism Society of America to support the needs of travelers with autism. Chrysler now offers a sensory package option for the Chrysler Pacifica. This package includes noise-cancelling headphones, fidget toys, and a weighted blanket to help create a comfortable and calming environment for children with autism during car rides.

No matter what kind of car you have, you can create your own DIY sensory station with similar options. Other things to keep in mind when planning a road trip are to:

  • Plan frequent breaks to allow your child to stretch and decompress.
  • Create a visual schedule to help your child understand the trip’s timeline.
  • Pack familiar items and sensory tools to help soothe your child during the journey.

3. Autism-Friendly Travel by Cruise Ship

Some cruise lines have begun offering sensory support for passengers with autism, including:

  • Autism on the Seas: This international charity provides tailored cruises for autism families. Their teams manage these cruises, which take place across multiple cruise lines.
  • Carnival Cruise Line: Carnival offers a variety of “sensory inclusive” activities, including modified youth programs and designated quiet spaces for relaxation.
  • Celebrity Cruises: This cruise line offers accessible cruises and interactive initiatives for families. They train their youth staff in autism awareness. They also cover various developmental disabilities and offer priority check-in, boarding, and departure.
  • Disney Cruise Line: Disney offers a number of services for guests with autism, such as priority check-in online and options for children who have trouble waiting in lines or crowds.
  • Norwegian Cruise Line: They have a team of “accessibility coordinators” who support travelers with special needs. They work closely with families with autism, addressing their concerns individually.
  • Royal Caribbean: Their “Autism Friendly Ships” program includes sensory-friendly films, toys, and modified youth activities to accommodate children with autism.

4. Autism-Friendly Theme Parks

Many popular theme parks have made efforts to accommodate guests with autism:

  • Disney: Disney offers a Disability Access Service(DAS) pass that allows guests with autism to schedule return times for attractions, reducing wait times and providing a more predictable experience.
  • Legoland: Legoland provides a Hero Pass for autistic guests, granting them the opportunity to bypass lines and access quiet rooms when needed.
  • Sea World: Sea World offers a Ride Accessibility Program (RAP) that helps guests with autism plan their visit and enjoy attractions at their own pace.
  • Six Flags: Six Flags has an Attraction Access Pass for autistic guests, allowing them to avoid long lines and access designated quiet areas.
  • Sesame Place: Sesame Place is the first theme park to be designated as a Certified Autism Center (CAC) and offers sensory guides, quiet rooms, and noise-cancelling headphones for guests with autism.

5. A Staycation for You and Your Autistic Child

If you prefer to stay close to home, there are plenty of ways to create a memorable and enjoyable staycation for your family:

  • Set up a backyard camping experience with tents, a fire pit, and s’mores.
  • Visit local attractions, such as museums, parks,
    and zoos, that offer sensory-friendly hours or events.
  • Create a themed week with daily activities based on your child’s interests – such as art, science,
    or nature exploration.

Planning an Autism-Friendly Vacation Can Be Simple

Autism-friendly destinations can make planning a family vacation less daunting and more exciting for all.

Focus on your child’s needs and explore autism-friendly places. Choose the best locations and accommodations for your family and your budget. A little thoughtful preparation can pave the way for a memorable and enjoyable trip for everyone involved.

ABA Therapy Covered by Medicaid in Illinois

Is ABA Therapy for Autism Covered by Medicaid in Illinois?

Yes, ABA therapy in Illinois is covered by Medicaid and overseen by the Illinois Department of Healthcare and Family Services (IDHFS).

What is ABA Therapy?

ABA stands for applied behavior analysis. Doctors, psychologists, and behavior specialists agree that ABA is the gold standard in treatment for autism.

All U.S. states have laws that require insurance companies to cover autism screenings, diagnosis, and treatment. This includes coverage for ABA therapy.

Contemporary ABA therapy — the approach we take at Total Spectrum — is backed by decades of research. ABA therapy can be provided in our Learning Centers, at home, in the community, or at school.

At Total Spectrum, we personalize your child’s ABA treatment to help them:

  • Build language and communication skills
  • Develop social and play skills, while forming friendships
  • Increase flexibility and tolerance for new routines and experiences
  • Decrease behaviors that interfere with growth and learning
  • Prepare for and succeed in school

How Can My Illinois Child Receive ABA Therapy Via Medicaid?

If you have Medicaid in Illinois, you can breathe a sigh of relief. Children and young adults under the age of 21 who are enrolled in Medicaid can now access ABA therapy services.

Historically, families experienced difficulties accessing ABA services through Medicaid in Illinois. However, with recent changes, families now have greater access to ABA services with companies like Total Spectrum. In Illinois, applied behavior analysis (ABA) services are called Adaptive Behavior Services (ABS), and the clinicians and BCBAs who oversee ABS services are referred to as ABS clinicians.

It’s important to keep in mind, though, that not all ABA providers accept Medicaid. It’s key to find an ABA service provider that accepts Medicaid to make sure your child’s therapy will be covered.

At Total Spectrum, we accept Medicaid and have you covered when it comes to providing ABA treatment.

What Is the Process for Getting Connected With an ABA Provider?

To access ABA therapy through Medicaid in Illinois, you need to follow these steps (If your child already has an autism diagnosis then skip to step 3.):

1. Receive a Diagnosis of Autism

    If you’re concerned that your child may have autism and has not yet been diagnosed, reach out to your pediatrician to discuss your concerns and get a referral for a Comprehensive Diagnostic Evaluation (CDE) by a physician or licensed psychologist.

    2. Select an ABA Provider

      Once your CDE is complete, you can choose an ABA therapy provider from the approved list provided by your Medicaid plan. Consider factors such as location, availability, and expertise when making your choice. You can find out where Total Spectrum provides services here.

      To find a list of providers, reach out to your specific Medicaid plan (Managed Care Organization):

      • Aetna Better Health
      • Blue Cross Community Health Plans
      • YouthCare
      • Meridian Health
      • Molina Healthcare
      • CountyCare Health Plan         

      3. Get an Assessment from a Behavior Analyst

        Work with your chosen ABA therapy provider to get an initial assessment for ABA services from a board certified behavior analyst (BCBA). The initial assessment will include an evaluation of skills (such as communication and play skills), identification of behavior challenges, and provide recommended goals and hours for therapy.

        4. Begin ABA Therapy

          Once you have received your initial ABA assessment and treatment plan, you can start ABA therapy for your child.

          Additional Resources

          In addition to ABA therapy coverage, Illinois Medicaid offers other supports for kids with autism. These include speech therapy, occupational therapy, physical therapy, and more. Be sure to explore these resources to provide comprehensive care for your child or young adult.

          Avoiding Roadblocks

          By following the steps outlined above, you can navigate the process and avoid roadblocks. Remember, you’re not alone in this process. Total Spectrum has dedicated professionals who can help you every step of the way. Contact us to learn more!

          RBT vs BCBA: What’s the Difference Between a Registered Behavior Technician (RBT) and Board Certified Behavior Analyst (BCBA)?

          When it comes to careers in the field of autism therapies, understanding the distinct roles of the professionals involved is crucial. 

          Two key positions in this field are registered behavior technicians (RBTs) and board certified behavior analysts (BCBAs). While both play essential roles in delivering effective therapy, they differ significantly in their responsibilities and qualifications. Learn about RBT vs BCBA salaries, roles, and more below.

          Understanding the Role of a Registered Behavior Technician (RBT)

          The role of an RBT is an entry-level position in the field of autism therapy. RBTs provide direct therapy to people with autism under the supervision of a BCBA. 

          To become an RBT, you must complete a 40-hour RBT certification, meaning a training program covering essential topics such as behavior management, data collection, and ethics. You must also pass a competency assessment and undergo a background check. At LEARN, we provide thorough behavior technician training and ongoing support for all BTs and RBTs.

          RBTs work with behavior intervention plans, collect data on client progress, and keep clients safe during therapy sessions. They play a vital role in teaching and reinforcing new skills, promoting independence, and reducing behaviors that interfere with growth and learning. RBTs work closely with BCBAs, following their guidance and reporting progress and challenges observed during therapy sessions.

          Exploring the Role of a Board Certified Behavior Analyst (BCBA)

          A BCBA is a highly trained professional who specializes in assessing, designing, and using behavior intervention programs for people on the autism spectrum. 

          To become a BCBA, you must hold a master’s degree in behavior analysis or a related field such as psychology or education. Additionally, you must complete a defined number of supervised fieldwork hours and pass the BCBA certification exam administered by the Behavior Analyst Certification Board (BACB)®.

          BCBAs are responsible for conducting assessments to identify the needs and goals of people on the autism spectrum. Based on these assessments, they develop behavior intervention plans tailored to each person’s unique needs. 

          BCBAs also provide training and support to other professionals, caregivers, and educators involved in the person’s treatment. BCBAs offer ongoing supervision and oversight to RBTs and other behavior therapy staff, and they make necessary adjustments to optimize outcomes. 

          BCBAs collaborate with other professionals, such as speech language pathologists, occupational therapists, school staff, and case managers to provide comprehensive care for people with autism.

          Comparative Analysis: BCBA vs RBT

          Here are the key differences in terms of educational qualifications, scope of practice, and career opportunities for a BCBA vs RBT:

          1. Educational Qualifications: RBTs need at least a high school diploma or equivalent and must complete a 40-hour training program approved by the BACB. In contrast, BCBAs are required to hold a master’s degree in behavior analysis or a related field, complete supervised experience, and pass a rigorous certification exam.
          2. Scope of Practice: RBTs work under the supervision of a BCBA, focusing on implementing behavior intervention plans and collecting data. BCBAs have a broader scope of practice, including conducting assessments, developing treatment plans, and overseeing the implementation of interventions. BCBAs have more autonomy and are authorized to make clinical decisions.
          3. Career Opportunities: RBTs typically provide direct therapy in various settings, such as schools and homes. BCBAs have more diverse career paths, including roles as consultants, supervisors, or private practitioners. RBT vs BCBA salary levels can vary across the country. Because of their advanced education and responsibilities, BCBAs generally earn higher salaries.

          Both RBTs and BCBAs play important roles in autism therapy, complementing each other to provide comprehensive support and intervention for individuals with autism. Understanding these RBT vs BCBA roles can help you make informed decisions about your career path in this rewarding field. To learn more about behavior technician jobs and ABA career opportunities available at LEARN, visit our careers page.